Jeff Golub gets diagnosis from the NIH

Jeff Golub

By Melanie Maxwell

Since 2011 when Jeff Golub unexpectedly lost his vision, an army of medical professionals have been unable to diagnose the underlying cause. However, a few weeks ago, Jeff did receive a definitively diagnosis from the National Institute of Health: Progressive Supranuclear Palsy or “PSP.” It is the same rare disease that actor Dudley Moore battled until his passing in 2002.

Unfortunately, a cure has not been discovered for this debilitating disease. The neurological symptoms of which have invaded Jeff’s life and livelihood and ended the beloved guitarist’s multi-decade musical career.

Last week, Jeff and his family posted the following letter on his facebook page, which they’ve asked me to share:

“Dear friends and family,

Just one year ago we announced that Jeff had taken a break from performing because of his health issues. At that time, it was apparent that he was suffering from more than just sudden blindness, but doctors were unable to pinpoint the cause or the probable outcome. Some suggested he was just having a tough time acclimating to his loss of vision. However, those who knew him best knew that something fundamental was changing, even though his doctors struggled to arrive at a clear prognosis.

     After a year of rapid physical deterioration and innumerable doctor appointments, we finally have a diagnosis. Unfortunately, the news is not good. Two weeks ago, Jeff went to the National Institute of Health, in Bethesda, MD to participate in their Undiagnosed Disease Program. Within just three days, the doctors at NIH confirmed that Jeff has a very rare disease called Progressive Supranuclear Palsy, or “PSP.” PSP is a progressively degenerative brain disease that has no cure. PSP is untreatable and aggressive.

     As we were told when we left NIH, the road ahead for Jeff will be difficult. Jeff’s mind is intact and he is fully aware of what is happening. However, the disease dramatically impacts his balance, ability to speak and ability to control his movements.  

     At this point it is quite difficult for Jeff to speak on the phone or respond to texts or e-mails. However, he loves having notes and messages read to him, so please do send your thoughts along, and don’t be discouraged if you don’t hear back. The incredible support of our friends makes a hard road easier to navigate.

     For those interested in learning more about PSP, the best resource is http://curePSP.org.

     We are all so grateful for your prayers, friendship and support. With love and enormous appreciation for those who love us and hold Jeff in their hearts,

Jeff, Audrey, Chris and Matthew” 

Bud Harner, Jeff’s manager, visited him in New York last week. Kirk Whalum and his wife Ruby, and many of Jeff’s other close friends have also made several trips to visit Jeff and his family.

One of Jeff’s best buddies, Rick Braun, is in the studio compiling a CD of cool outtakes and other musical magic from Jeff, which is scheduled for release early next year. The royalties of which will be donated to the Golub family.

Meanwhile, if you would like to help Jeff and his family, please consider a contribution to The Jeff Golub Medical Expenses fund. They could certainly use our support now more than ever. Fans and friends can donate online at www.jeffgolub.com, or by sending a check or money order payable to “Jeff Golub Medical Expenses” to his manager, Bud Harner, at Chapman & Co. Management Inc., 14011 Ventura Blvd., #405, Sherman Oaks, CA 91423. Harner can be reached at 818-788-9577 or via email at bud@chapmanmanagement.com.

For more information on Golub, or to sign up for his newsletter, visit www.jeffgolub.com.